A baby boy born with no kidneys, bowels or genitals and with his legs fused together has died at just a day old.
"Miracle baby" Joseph Shaw weighed just two pounds when he was born at Royal Derby Hospital on Februrary 3.
But the tragic infant died the following day in his dad's arms, Derbyshire Live reports.
Dad Stefan Shaw, 26, said he and ex-partner Chelby, also 26, had their son christened at the hospital before his death, and are now fundraising to give their son “the best send-off possible”.
Mr Shaw, who is currently homeless and sleeping on a friend's sofa, said his son was delivered via emergency C-Section seven weeks early.
He said: “When I got to the hospital they said that from the waist down Joseph was like a fish.
“It was very upsetting for me but I knew I had to keep strong. He was on oxygen but they let me go and see him.
“I had never seen a baby like my son. He was like a mermaid, he was a unique, beautiful baby boy.”
Mr Shaw said Joseph’s condition continued to worsen and the parents were told that he would not make it.
Doctors said Joseph could be christened by the hospital's priest before he passed away.
Mr Shaw said: “They had to pump air into him while he was being christened to keep him alive.
“We stood around our miracle baby had him christened for his last precious moments before we had to let him go.
“While I was holding him they took the tube out of his mouth and he died in my arms. It was very heartbreaking and extremely hard to let go of something that meant the world to you.”
The parents were told that they could stay with Joseph in hospital for as long as they wanted to spend time with him.
Mr Shaw said after spending three days with him they were planning on saying goodbye on Saturday.
Mr Shaw, who suffers with mental health issues, said the reality has not hit him yet.
He said: “I know I've got to stay strong and we’ve both got support from our families.
“Now I just want to share Joseph’s life with people.”
Mr Shaw said he had then-partner Chelby were trying for a baby for a year before she got pregnant.
He said: “When Chelby went for her 20 week scan we were told that Joseph wouldn’t make it as there was no fluid in the amniotic sack and no kidneys.
“We thought the worst but he made it three months more. Doctors were shocked he survived so long.”
Mr Shaw said he and Chelby are now planning their son’s funeral. They have set up a fundraising page, you can donate here or here.
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